This post is a bit complaining. Sorry.
I am one day post-IVIG #4. I'm wrapping up my day at work and feeling like stink. My head is throbbing; the lights are hurting my eyes. I'm very much looking forward to going home to bed.
The last couple of treatments, my reproductive immunologist let me have at home with a nurse. It was much easier to be tucked in my own bed, loyal boxer by my side, IV in my arm, trying to sleep through it as much as possible. For some reason, he's now changed his policy and required me to come in to his office. He also requires me to get the infusion in the morning, and since it makes me so sick afterward, means I miss an entire day of work. So I went in to his office and laid on a super-uncomfortable exam table from 8:30AM-2:00PM, fluorescent lights shining in my eyes. The exam table is uncomfortable when not pregnant. Now in my second trimester, it was fairly unbearable by the second hour. I was not a happy camper. I was an especially unhappy camper once the chills and low-grade fever set in. Because I had that reaction, they slowed the IV drip, making the whole thing take much longer. An hour after that, my IV infiltrated, meaning, we had to find a new vein...ugh...
I told the nurse at the end that I don't think I can do this again - go through this again on that exam table in his office (it feels especially egregious that he charges me $400 to use his office, when I'd much rather not!). Hopefully all of my blood work will come back wonderfully this next time and the RI will say I don't need another treatment, but if I do, I'll have to come up with another plan, one that will allow me to at least be semi-comfortable while going through this. We will see. I think the next blood work is in a few weeks.
I am very grateful IVIG exists, and maybe it's actually what's behind keeping this baby alive. I don't know. I wish I had a better sense of that, that I felt more sure of the evidence behind it (that there was any good evidence behind it), because I really don't find the treatment easy. And the cost? Well....yeah...that's sobering too. It is obvious, based on my physical responses to it, that it is powerful stuff. I sure hope it's doing something helpful.
Tomorrow I see the OB early and then head to the Mohs surgeon for the basal cell procedure. I think I will be very glad when this week is over.
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